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Posted On 15 August, 2003

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a quick update on Rob: he’s been home for a little over a week, and we’re starting to figure out a routine that works for him. 6 cans on ensure a day, 8 meds between one and four times a day - some with food, some without, some before food, some while standing on your head and humming “o danny boy”. (ok, i made the last one up.) we can change him, roll him, feed him, and move him without dropping him. he seems to be regaining a small amount of strength… very small, mostly in his arms. communication is still pretty much non-existant. in-home nursing and therapy are getting scheduled. it remains to be seen if we (family, that is) can put together a collective schedule that meets rob’s needs w/o killing us.

my deep philosophical insight into all this: it sucks.

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